Ava is my daughter and living with Polyarticular Juvenile Rheumatoid Arthritis. I hope you enjoy our blog and find it helpful and supportive to other parents and children going through the same ordeal. Together we can make a difference and hopefully bring awareness for this childhood disease. Ava is consider severe, Ava has it in her fingers, wrist, hands, elbows, hips, knees, ankles, feet, and toes. Ava ia also ANA + meaning she has it in her eyes as well!!
Thursday, January 12, 2012
What a winter
It has been a few months since I last blogged. But what a roller coaster ride it has been for Ava and I. There are days I wonder why her. In August Ava had a procedure in her right knee. The steroids were not working or the methotrexate, or the maloxicam. she had to get sedated and they were able to remove a about 5ml of fluid from her joint and inject a steroid. I was so relieved it worked. The school she goes to offers PT and OT to her for Pre K which is awesome. Ava is still getting sick a lot but is pushing threw it. Ava is still getting her injections of Methotrexate once a week and taking her anti-inflammatory every day. The problem we face now is the short is which is sad and stressful as a mom. I hope the manufactures will knock off the nonesense and just make the drug.
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