Ava is my daughter and living with Polyarticular Juvenile Rheumatoid Arthritis. I hope you enjoy our blog and find it helpful and supportive to other parents and children going through the same ordeal. Together we can make a difference and hopefully bring awareness for this childhood disease. Ava is consider severe, Ava has it in her fingers, wrist, hands, elbows, hips, knees, ankles, feet, and toes. Ava ia also ANA + meaning she has it in her eyes as well!!
Sunday, July 17, 2011
Heat
We have decided to weed Ava off her Prednisone which makes since. Ava has been on such a high dose for so long but all of sudden with the heat and humidity. Ava has not been able to walk long distances anymore and it is wearing out my little peanut. Ava has become extremely determine to push her little self. However it catches up to her and becomes to much. She starts to cry her knees hurt and slows down. My heart breaks for her, only if people knew. What this little angel is going threw. Ava has poly-articular but she always walks the fine line of systemic arthritis. We need to find a cure.
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